Hypothyroid after Total Thyroidectomy
I have MS and deal with other autoimmune issues too. This VLOG was taken right after my total thyroidectomy for Hashimoto’s (10 cm on right lobe, 6 cm on left) in January 2008 and about 6-7 weeks when I had gone totally hypothyroid. Notice the puffy face: myxedema. My TSH has jumped to 40 at this point and I am extremely depressed, tired and have gained about 20 lbs. and cannot budge the scale despite almost 1-2 hours of martial arts training daily.
Tagged with: hypothyroid • hypothyroidism • MS • multiple • myxedema • sclerosis • surgery • thyroid • thyroidectomy • total • TSH
Filed under: Videos About The Thyroid Gland From Youtube
dont worry, weight will stabilize. i went from a size 6 to a size 20. now i am at a 16 and have been size 16 for 3 years now. I actually look good at this size so it dont bother me….at this point be aware that a sudden increase or drop in weight can signal a problem. eat when you are supposed to, if they gave you the food list, and theres stuff on there you dont like…eat it anyway. my left lobe is gone, i’m always cold, that wont go away but everything else can be managed. praying for you.
Is it safe to take medication like Synthroid
even though you might not have Hypothyroid?
No, it isn’t. You can end up being hyperthyroid which has it’s own set of problems like fast hearbeat, agitation, and God forbid: thyroid storm. People used to take Synthroid to lose weight in the past. This is a bad use of it. If you suspect you are hypothyroid, you should see an endocrinologist and get your blood tested.
Hi. A relative of mine had to have the radioactive iodine about 10 years ago. She couldn’t be around pregnant women, children, or pets for about 2 months. A lot of her hair fell out, but after the 2 months it started growing back. She had nausea during that time. It was worth it to her because her overactive thyroid was easier to control.
hi diana, how long does the removal surgery take? and for how long will the the patient be unwell?
Bless you with full recovery.
Hi 0ctopi: The surgery took somewhere between 1.5 - 2 hours. Recovery … a few hours. I had a crackerjack ENT (specialized in the neck) who removed a very large thyroid from a tiny 2″ incision. This is not the norm (incision size). This will affect recovery and pain. I left the hospital the next day. Regulating TSH has taken me about 1 year. I have MS too, so some of the symptoms overlapped which makes it more difficult. I was started on .50 mcg of Synthroid and am now to 150. Hugs!
Before your operation how long had you been living with the enlarged gland? and how badly was your breathing or swallowing effected? HOPE YOUR MUCH BETTER NOW & GOD BLESS!!!
It was noticed on an MRI in 2004. I noticed collars getting tighter several years before. But it really blew up in 2007 and was growing down and out into my chest. One lobe was 10cm and the other 6-7cm. It was large and by the time I was getting it removed it was really pushing on my windpipe and affecting all of that. It didn’t happen overnight. Actually, swallowing is still affected and related to MS (dysphagia). TSH is level and I feel a lot better in general.
I have a question
I have to take 0.25mg of synthroid for a month
can i go through Withdrawal
if i stop taking it?
I think you need to talk to a doctor about this. If you are hypothyroid, you will eventually begin to experience the effects of hypothyroidism. .025 is a small dose. Don’t take it without the right lab tests and without a doctor’s guidance … it’s not something to mess with and can be very dangerous (especially if it makes you hyperthyroid). Talk to a doctor.
thanks for letting me know; I decided that the cancer that I had was the least life threatening and the radioactive iodine would not increase my survival chances and that I was not going to go through it.
The reason why it’s less life-threatening is that it’s easier to get rid of, and spreads slower from the thyroid. I hope you do eventually go ahead and get it removed, because it would be senseless to die from a treatable cancer. Once the cancer spreads, it’s not so easy to treat. I hope you recover fully. Please remember to inform all your blood relatives to be tested for both low and high thyroid.
It’s safe only with a endo’s supervision. Some people are subclinical and need it, and the endo only goes by symptoms, so if you take it and have overactive symptoms, you shouldn’t take it. Taking it when you don’t have low thyroid can cause heart attack or symptoms like tremors, sweating for no reason, heart palpitations, diahrea, headaches, etc. The thyroid is the thermostat of the body. Taking unneeded thyroid is like turning on the heat in 90 degree weather. It’s dangerous for your health.
No, I started taking Synthroid when I was 8 years old. I stopped taking it when I was 14 and was on and off it through the years. I am 22 now and I plan on staying on it.
Hi Deanna, So did you have endoscopic surgery? Yours is the smallest incision I’ve seen. I will be having surgery in two weeks and am stressing about the large incision and damage to my vocal nerves. How was your voice after surgery and did it fully recover?
Hi there hpygal — mine was not endoscopic — it was just a very skilled surgeon. She is known for her small incisions. I have no idea how she got my large thyroid out of that small incision. Amazing!!!!! I’ve not encountered anyone with as small an incision either.
Hi,
Firstly well done!
This coming Monday Ill have a total thyroidectomy; I cant tell you how scared I am! Ive done plenty of research so I roughly know what to expect.Please could you answer me the some questions?
How did you feel in yourself after the op?
How quickly did you start putting on weight (thats if at all) and is that back under control?
How was eating after the op? How are you towards others now? I heard some people have mood swings and are emotional. Many thanks,
Mona
Hi Mona,
My Thyroidectomy was one of the easiest surgeries I have ever been through. I was eating the first day out of surgery. It was very easy.
I gained weight due to other medications (Lyrica). It took about 6 months to get my TSH under control and steady. I never noticed any mood swings, If you are moody, you can talk to your doctor about that and they can help. No reason to be afraid at all. Just listen to your body and get the appropriate blood tests as needed to balance the TSH.
hello thr i went 2 the doctor and i need a blood test and showed that my tsh is low. i always feel sooo wired. my symtomes are triedness, high blood prusser, feeling lazy, sleepy, headecs, neck and back pain. im a swimer and im not gaining anyweight. my doctor told i have low tsh. can u tell me u symtoms and what should i do??? thank u.
Hi there,
Low TSH actually means that you are HYPERthyroid. That is the opposite of me - my TSH was high. They will need to examine what is causing your TSH to be low. Graves disease (autoimmune) or something else. Depending on how it affects you they may do surgery or radioactive iodine to slow it down. Hyperthyroidism can be dangerous. I hope you get everything taken care of. Sending a prayer!
I’ve had mine taken out at 14 years old. You still look cute, hon!
How do you function without your thyroid gland? I mean, do you take medicine or what?
I do take medicine after my total thyroidectomy. It’s a generic brand of Synthroid called Levothyroxine, merely a replacement. Without it, I’d be a corpse. That goes for anyone who has their thyroid gland removed, they must go on a replacement/ suppliment. Talk with your doctor next time you see him/her. That’s if you’re that interested!
im hypo-thyroid. it sucks im looking on the inter net to learn more about it. im have has it for almost 4-years now. i’m 12 years old and starting middle school. i HATE going to my docter “dr.Brenden”. i also live in North Carolina. gosh. my grandma, and great grandma had a thyroidectomy.
hey if u could reply tell me what u think that would be nice